Lincoln had his speech evaluation last week. It was great! He was very good and as cooperative as Lincoln gets the whole time. I haven't gotten their official evaluation back yet, so I don't know exactly how he scored on everything, but he is now getting speech therapy twice a week. He was supposed to start yesterday, but both he and his therapist were sick, so we will start tomorrow.
About twenty minutes into the evaluation, his speech therapist asked if he also sees an OT (occupational therapist) I paused and said, "Well..." and before I could continue she said that Lincoln has some sensory issues and really needs to be getting OT as well. I told her that the Regional Center had told us the same thing, but that we were running into some issues with getting the therapy. So I guess it was good to hear that from yet another person.
Now for the step back. Lincoln is sick this week. We've all had a horrible cold the last few weeks, but Lincoln hadn't seemed to be affected until this weekend. Saturday and Sunday he seemed off. Not really sick, but even more difficult that usual. The Sunday night I was woken up by the sound of Lincoln's wheezing. From another room. Seriously, it was that bad. A few minutes later he came into my room and was coughing and wheezing like crazy. If I was a smart mom I probably would have gotten out of bed and taken him in right then because he was obviously struggling to breathe, but I'm not, so I just rubbed vapo rub on him, started a humidifier and stayed up most of the night listening to him breathe. Monday morning I got up and made him a doctor's appointment. We've all been sick, but none of us were like that. Well the good news is, he isn't really that sick. The bad news is he has asthma. I've been told many times by several doctors that he has "asthma symptoms" or similar things, but yesterday he was actually diagnosed. Now I know that Asthma isn't the end of the world. In fact, it really isn't that big of a deal. It is however, a bit upsetting to me because it is something that I'm going to have to be aware of for the next 16 years or so, and yet another thing that I'm going to have to start listing as "What is wrong with Lincoln," on forms. I think I might have rather heard that he has swine flu. Oh, but while we were at the doctor they asked me how his evalution was and i told them about the OT thing, and they gave me a referral right then and there! So pending insurance aprroval we should be starting OT soon!
So just in case anyone is keeping score, we now have...
speech delay (therapy 2x week)
developmental delays (all areas- working on getting him into a developmental preschool)
sensory processing disorder- starting OT soon
Regulatory issues- again OT
Allergies- dairy, seasonal, and penecillan
Asthma.
I know there are lots of kids with bigger issues, and I really am greatful for how healthy and happy my kids are. I would just like to be finished with the "finding out what is wrong" stage of our lives.
3 comments:
Oh my that's too bad, but liveable I'm so glad the therapy is starting to happen though, where do you go? I know have to work on geting an IEP from our school district did you already do that? I guess it's because Drew is now 3, we still have session's left but we need to get it to continue.
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Just wanted to give you a hug and let you know I understand how you feel. I used to carry around a piece of paper with a HUGE list of "What's wrong with Sydney". Dairy issues, sensory issues, food issues, herniated belly button, ACC on her head, semi closed esophagus...it seemed never ending. Not one thing was a huge deal, but everything together was very overwhelming. Good news is that she's almost 5 and almost everything is "fixed". It gets better. Hang in there! Oh, and I had severe asthma as a kid (and allergies). As an adult I don't have either. You'll get there. You're a great mom!
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