So I rushed him to the ER at the closest hospital, which happened to be a children's hospital. I figured out that things weren't looking good when they took him back ahead of the child in front of us who had a compound fractured arm and several teeth knocked out, and the child behind us who had cranial swelling. They took his vitals, and they looked good. Chest x-rays showed "cloudy areas" which they told me meant that he had had water in his lungs, but it was mostly out now. Then they told me that he needed to be admitted overnight, but that my insurance would only cover an overnight stay at the military hospital. Lincoln would be going on an ambulance ride, and since I had driven him to the hospital with Savannah he was going to have to go alone.
So we waited until the ambulance came to get him, and then Savannah and I went home, changed out of our swimming suits, packed overnight bags, Savannah went to our friend Shane's house for the night and I headed to the other hospital. By the time I got there he was all settled in and had four doctors waiting for me so they could examine him and question me. They assured me that he looked great and we would be going home first thing in the morning. By the time they finished with him it was 1 am, and we were both exhausted. He went right to sleep, and I tried to sleep, but it was difficult because his alarms went off every 5-10 minutes indicating that his respiratory rate was too high. At 6 am they came to get him to repeat the x-rays. Seven doctors/residents came around 8 am and told us that we should be leaving very soon. A few minutes later our roommates left. At noon they finally came back and told us that they had decided to do an EKG and they wanted him to see a cardiologist before we left. At three a doctor came in and explained to me that his QT level was borderline on his EKG and they were concerned about that. A few minutes later a pediatric cardiologist and a regular cardiologist came in. After I answered what seemed like a million questions and a brief exam of Lincoln they decided that they weren't worried about his heart. Half an hour later we were on our way home with a clean bill of health an a follow up appointment with his pediatrician for a week later. It was mentioned several times by almost every doctor that saw him that they thought he could have had a seizure, but they just wanted me to watch him.

So we went home, thanked God that he was OK and went on with our lives. Lincoln seemed VERY tired for the next week, and had a ton of potty accidents but otherwise seemed fine. We almost didn't go to his follow up appointment because he was tired and I was ready to go back to normal life. We went anyway. When the doctor came in the room she said that she had read the hospital report, but she wanted me to tell her again what happened. I got to the point where I pulled him out of the pool, when she interrupted and said, "I think he had a seizure. I don't know why they didn't look into that more at the hospital." So she put in an urgent referral for an EEG, and also asked us to repeat his EKG in 6 months since it was borderline abnormal. She also said that she believed that she believes that when Lincoln stares off in space (which he has always done) and when he has his accidents that he may be having mini seizures. I left the appointment, went home and cried. Poor Lincoln already has enough issues in his little life, did we really need to add seizures? The next day I was talking to the other moms in the waiting room at his therapy and was surprised to learn that many other kids with SPD also have seizures.
We got a call Thursday afternoon that his EEG would be on Friday morning. I was told to keep him up until at least midnight that night and to wake him up at 4 am since he needed to be sleep deprived for the test. That night was torture! We finally arrived at his appointment at 8 am, and he was so tired he was to the point of being completely hyper. It took them 45 minutes to get him to sleep. But he did well with the test, and we were soon on our way back home with no answers. Today, 5 days later, we finally got a call with the results... his EEG was completely normal! But his pediatrician is still concerned and wants him to see a neurologist. I'm fine with that, I've always said that it is better to have things checked out and know they are fine than to just ignore them and hope they are. So sometime soon we will be doing that.

In the meantime in the past two week I had a Scentsy party, Lincoln had his IEP evaluation last week which was almost three hours long and his most important developmental evaluation to date, Savannah has been sick, and we are house hunting. I'm ready for the calm now. Oh, and somewhere between the pool and the second hospital I lost my camera. I know I had it at the pool because I was taking pictures. I know I did not have it when I was searching for my valet ticket when leaving the first hospital. It was not turned in to the lost and found at the pool or the hospital.
5 comments:
Ohh Carley! I am so sorry you're going through all of this alone! Must be so dang scary! I'm glad Lincoln is okay through all of this! I had seizures as a kid, and had to do an EEG -- they never found anything "wrong" with me, either, but I had to take Phenobarbital every night of my life from when I was 3 until I was 10 years old. I hope they find something to help the poor little guy!! I'll keep you guys in my prayers!!!
Wow. I'm so glad he is okay and has no lasting effects from the pool. How scary!
Wish I could help you! You are in my prayers!
If I could be there to help you out I would be there in a second. I am so grateful that he is okay and that maybe this will be something that helps him out in the future if seizures were something subtle happening to him all along. And that TOTALLY sucks to lose a camera in the middle of all that! Maybe you can use your Target 10% off to get a new one lol! Hugs and prayers Carley for your baby boy and his mommy.
oh my goodness Carley!! I'm SO glad he's ok! Wow! You are amazign to do this all on your own. Such a good mommy.
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